Alice Wong, a notable figure in the fight for disability rights, has passed away at the age of 51. She died on Friday from an infection at the University of California, San Francisco hospital, leaving behind a powerful legacy as a writer, activist, and community organizer. Wong was widely recognized for her role as the founder and director of the Disability Visibility Project (DVP).
A Legacy of Advocacy and Cultural Impact
The Disability Visibility Project, established in 2014, aimed to amplify the voices and stories of disabled individuals. It highlighted disability culture through storytelling and social media. Wong’s friend, Sandy Ho, described her as a “hysterical friend” and “disability justice luminary,” noting that her work left an indelible mark on American culture.
In a heartfelt tribute, Wong’s family remembered her as a fierce advocate for disability justice, a brilliant writer, and an inspiring community organizer. They quoted her memoir, *Year of the Tiger*, stating, “The real gift any person can give is a web of connective tissue.” This sentiment encapsulated Wong’s belief in the importance of connection and community.
Early Life and Education
Alice Wong was born in 1974 to immigrant parents from Hong Kong in the suburbs of Indianapolis, Indiana. Diagnosed with muscular dystrophy at birth, she faced numerous challenges, including an early prediction from doctors that she would not live to see her eighteenth birthday. Despite these obstacles, she embraced education as a pathway to empowerment, earning a bachelor’s degree from Indiana University–Purdue University Indianapolis and a master’s degree from the University of California, San Francisco.
Advocacy and Impact
Wong’s commitment to disability rights expanded throughout her career. She gained recognition as a prolific writer, contributing to various media, including *Teen Vogue*, and authoring her acclaimed memoir, *Year of the Tiger*. Her writings often conveyed her passion for living unapologetically as a disabled person.
- Co-founded #CripTheVote in 2016, creating a platform for disability discussions between voters and politicians.
- Opposed systemic ableism and advocated for accessible healthcare practices, such as mask-wearing.
- Utilized digital technology to continue her advocacy, especially following health challenges in 2022.
Recognition and Honors
Wong was the recipient of the MacArthur “Genius” Award, highlighting her significant contributions to the field of disability activism. She served on the National Council on Disability from 2013 to 2015, where she furthered her advocacy at the federal level. Notably, she attended a White House event for the 25th anniversary of the Americans With Disabilities Act through a telepresence robot, showcasing her innovative approach to activism.
Conclusion
Wong’s legacy is characterized by her relentless fight for justice and representation for disabled individuals. Her impact through the Disability Visibility Project and her literary works will continue to inspire future generations. As we remember Alice Wong, her words remind us of the importance of connection and advocacy in the pursuit of a more equitable world.
