John Davidson’s journey with Tourette syndrome began at age 10, marked by minor facial tics. By 13, his symptoms escalated to involuntary movements that he likened to a scene from “The Exorcist.” Constantly wrestling with his condition, he experienced intense frustration due to the lack of understanding and support. Growing up in Galashiels, Scotland, Davidson recalls being told his symptoms were intentional.
I Swear: Film Challenges Abuse and Misuse of Tourette’s Syndrome
His experiences inspired a film titled “I Swear,” which is based on Davidson’s forthcoming memoir set for release in 2025. The lead role will be played by Robert Aramayo, known for his work in “Game of Thrones.” Davidson is now a campaigner for Tourette syndrome awareness and has been recognized with an MBE for his efforts.
The Reality of Tourette’s Syndrome
- Over 300,000 people in Britain are affected by Tourette syndrome.
- Approximately one in 100 schoolchildren is estimated to have the disorder, according to NHS England.
- Tourette’s presents in various ways; coprolalia (involuntary swearing) affects about 10% of those diagnosed.
Despite his advocacy work, Davidson highlights the challenges of living with Tourette’s, especially after receiving ineffective treatments in childhood. “Anti-psychotic medications turned me into a zombie,” he explains, reflecting on lost memories from that period. John has often faced the stigma surrounding the condition, particularly regarding media representation.
Media Misrepresentation
Documentaries often focus on coprolalia, leading audiences to erroneously associate it with all individuals with Tourette’s. Davidson notes that while the comedic element might entertain some, for those living with the condition, it is a source of pain and frustration.
During the 2019 MBE award ceremony, Davidson inadvertently exhibited vocal tics, causing public shock. He labeled the moment as “horrific,” underscoring that coprolalia is not typical for everyone with Tourette’s.
A New Understanding Through Film
The film’s director, Kirk Jones, aims to reshape the narrative surrounding Tourette syndrome. His initial encounter with Davidson was a learning curve as he adjusted to understanding the nuances of the condition. Jones wants the film to highlight the need for compassion and support, rather than perpetuating stereotypes or seeking sensationalism.
At 54 years old, Davidson shares a hopeful outlook, stating that society’s tolerance of Tourette’s is improving. “It’s about not being shocked. Feel free to laugh, because when you laugh, it breaks the ice,” he encourages, advocating for conversations around the condition.
Upcoming Release
“I Swear” will premiere in UK and Irish cinemas on October 10. This film aspires to illuminate the realities of living with Tourette syndrome, moving beyond laughs to foster genuine understanding and support. For those seeking help or more information on Tourette syndrome, resources are available at Tourette Action or Tourette Scotland.
