Disability Rights Activist and Author Alice Wong Dies at 51

Alice Wong, a prominent disability rights activist and author, has passed away at the age of 51. Her death occurred due to an infection at a hospital in San Francisco. Wong was recognized as a significant figure in the disability justice movement.
Legacy of Disability Rights Activism
Born to immigrants from Hong Kong, Wong lived with muscular dystrophy. She utilized a powered wheelchair and an assistive breathing device. Throughout her life, she advocated for the rights of individuals with disabilities, particularly those from marginalized communities, including people of color, LGBTQ individuals, and immigrants.
Inspiration and Advocacy
Wong’s work significantly impacted the lives of many. She expressed a desire for a society where people with disabilities could enjoy autonomy in their lives. Her friend Sandy Ho described her as a “luminary” who fought for the right to live in the community rather than institutions.
- Founded the Disability Visibility Project blog
- Authored and edited several influential books
- Recipient of the MacArthur Foundation’s “genius grant” in 2024
Before her passing, Wong shared her journey, emphasizing the importance of community and support in her life. “We need more stories about us and our culture,” she had written, highlighting the necessity for visibility in narratives concerning disability.
Wong’s Impact Through Writing
Her memoir, “Year of the Tiger: An Activist’s Life,” combines humor with poignant tales of her experiences, allowing readers to understand the human side of disability. Wong’s legacy is one where individuals with disabilities are empowered to “speak for themselves,” ensuring their voices are heard without external representation.
Alice Wong’s contributions to disability rights will continue to inspire future generations. Her commitment to advocating for dignity and autonomy will not be forgotten.




