Alice Wong, a prominent disability rights activist and author, has passed away at the age of 51. Her death on Friday was due to an infection at a hospital in San Francisco, as confirmed by her close friend Sandy Ho. Wong was celebrated for her contributions to the disability justice movement and her dedication to advocating for people with disabilities, particularly those from marginalized backgrounds.
Alice Wong’s Impact on Disability Rights
Wong was the daughter of Hong Kong immigrants and was diagnosed with a progressive neuromuscular disability in her childhood. This condition required her to use a powered wheelchair and an assistive breathing device. She became a vital voice for those with disabilities, fighting for their rights and autonomy.
Literary Contributions and Activism
Before her passing, Wong left behind a powerful statement that reflected her journey. She expressed gratitude for the friendships and mentorships that shaped her life, noting, “We need more stories about us and our culture.” Wong was passionate about moving people out of institutions and promoting community living.
- Founder of the Disability Visibility Project blog
- Authored and edited multiple influential books
- Shared diverse voices and experiences in disability narratives
Wong’s memoir, “Year of the Tiger: An Activist’s Life,” combines humor with profound insights, making the complexities of disability relatable and engaging. Her writings emphasize the importance of self-representation within the disability community, encapsulating the belief that individuals with disabilities should advocate for themselves.
A Tribute to a Luminary
As a member of the 2024 cohort for the John D. and Catherine T. MacArthur Foundation fellowships, Wong was recognized with the “genius grant” for her groundbreaking work. Sandy Ho described Wong as a “luminary” in the disability justice movement, dedicated to creating a world where everyone could experience freedom and autonomy.
The legacy of Alice Wong will continue to inspire future generations of activists and writers within the disability rights community. Her humor, strength, and advocacy have paved the way for greater awareness and acceptance.
